Time to check some things off your Bucket List. Come join us for one or all three of our Challenge Events in support of ALS.
We are a registered 501c3 Non-Profit, Tax ID 27-1823372, with a Mission to put on physcially challenging events that include StairClimbs, Cycling and Skydiving, where the participant, steps outside their comfort zone to understand the extreme challenges that ALS patients face everyday.
ALS, Amyotrophic Lateral Sclerosis, aka Lou Gehrig Disease, named after the famous New York Yankee baseball player who developed ALS in 1939 was forced to retire after 17 seasons (which was the longest streak of any American playing in MLB, all with the Yankees). Gehrig was renowned for his prowess as a hitter and for his durability, which earned him his nickname, The Iron Horse.
Lou Gehrig died from ALS on June 2, 1941, just 17 days before his 38th birthday. ALS is a progressive neurological disease that was discovered in 1869 by a French doctor named Jean-martin Charcot. As a progressive disease, it means it gets worse over time destroying nerve cells in the brain and spinal cord which control the muscles throughout the body. Those nerve cells lose their ability to initiate and control muscle movement, which leads to paralysis and death. People with the condition lose control of muscle movement, eventually losing their ability to eat, speak, walk and, ultimately, breathe.
The life expectancy varies for each individual after diagnosis is 8 to 10 years. With some people it can be as short as 3 years or as long as 20 years, or even 55 years as it was for the famous, renowned scientist, Stephen Hawking. He was diagnosed in 1963 at the age of 21 and died March 14, 2018, a remarkable and unheard of 55 years later. ALS can also go undiagnosed for several years, too. So here we are 80 years after Lou Gehrig’s passing and ALS is still incurable and as devastating to individuals and families as ever.
Over 30,000 Americans suffer from ALS at any given time, with a new case diagnosed every 90 minutes.
So, what has been happening?
Even though many famous people have died of ALS, the awareness factor is still pretty low. You say ALS to people, and some may know what it is. You say Lou Gehrig Disease and more know, but you say Ice Bucket Challenge and it’s, oh yeah, I did that!
Until the Ice Bucket Challenge went viral in the summer of 2014, a lot of people had no idea that such a disease even existed. Once people started getting involved, the campaign brought in over $220,000,000 worldwide to support ALS. A total incredible accomplishment. The origin of the campaign has been attributed to Pete Frates, a Boston College alumnus who was diagnosed with ALS in March 2012 and Pat Quinn, who was diagnosed just a year later in March 2013.
The Ice Bucket Challenge was an activity involving the pouring of a bucket of ice water over a person's head, either by another person or self-administered, to promote awareness of ALS. The challenge encourages nominated participants to be filmed having a bucket of ice water poured on their heads and then nominating others to do the same. A common stipulation is that nominated participants have 24 hours to comply or forfeit by way of a charitable financial donation. Quickly the challenge went viral through Social Media with celebrities posting videos. They included Formal President George W Bush, Bill Gates, Oprah, Patrick Stewart, Taylor Swift, Chris Pratt, Jeff Bezos and many others. In the end over 20 million videos were posted blowing up social media and creating the most successful fundraising campaign in history.
Unfortunately, like with all people with ALS who eventually pass away, so did Pete and Pat. Pete died December 9, 2019 at age 34 and Pat died just recently on November 23, 2020, at the age of 37. Way too young for both of them. The legacy of these two ALS Warriors, along with many other you will find out about, will live on forever because of what they did to bring greater awareness to this horrible, “BEAST” of a disease. August is Ice Bucket Challenge Month so “Every August … Every Year … Until There Is A Cure” do an IBC and honor Pete & Pat.
Challenge2ConquerALS has teamed up with Dr. Stephen J. Kolb and THE OHIO STATE UNVERSITY WEXNER MEDICAL CENTER - ALS/MND Multidisciplinary Clinic and Research Program to donate all the proceeds of their Challenge Series Events in support of the work being done at OHIO STATE UNIVERSITY WEXNER MEDICAL CENTER. Your contributions and sponsorships are so very much appreciated and are 100% Tax Deductible under our Registered 501c3 Non-Profit, Tax ID 27-1823372. Sponsorships are currently available. Please contact Barry Sopinsky for Sponsorship opportunities at: firstname.lastname@example.org
All events put on by Challenge2ConquerALS will adhere to the CDC Gulidlines for everyone's safety. Please click on the link below for more information.
Currently no StairClimb events are scheduled for 2021. Keep in touch by joining our mailing list.
Come join TEAM Cycle2ConquerALS in 2021 and have the bike ride of your life while helping support so many that have been affected by ALS in their lives. There were two scheduled events: June 9-11, 2021 in the San Juan Mountains of Southwestern Colorado. This is an Epic, Challenging Event over 235 miles, 5 mounatin passes and 17,000 feet of elevation gain. All in 3 wonderful days. Unfortunately this year the event had to be cancelled. Be sure to look for it coming back in 2022.
The second cycle event will take place in Columbus, OH on July 10, 2021. It is the Inaugural OHIO Cycle2ConquerALS. You will ride a Metric Century Plus 5.1 (67.2 miles). It is an out and back ride most on the 'rails to trails' in the heartland of Ohio. The ride will start and then end at OHIO STADIUM, where afterwards a Barbecue, Expo & Festival will take place with our special guest appearance by Barry Sanders, NFL Hall of Fame Legend. The 4th highest rusher in NFL history so far. Barry and our ALS Warrior, William White played together on the Detroit Lions. The event has been organized and produced by the Non-Profit, Challenge2ConquerALS,
Tax ID 27-1823372
Let's check skydiving off
your bucket list.
LIFE BEGINS AT THE END OF
YOUR COMFORT ZONE.
"Once you have tasted flight, you will forever walk the earth with your eyes turned skyward, for there you have been and there you will always long to return"
Leonardo Da Vinci.
Our Skydive Event is
In Memory of The EAGLE, Bob Amann
May 25, 1952 - January 16, 2021.
The 2021 OHIO SkyDive2ConquerALS event will take place on July 11, 2021 at AerOhio Skydiving Center, 701 G. Township Rd 1102, Ashland, OH 44805, 800-726-3483.
We are very happy to be working with Sherry Butcher and everyone at AerOhio Skydiving Center.
Cycle@ConquerALS is part of the Challenge2ConquerALS Non-Profit, TaxID 27-1823372 and has been putting on challenging cycling events since 2009, raising funds and increasing awareness for the devaststing, always deadly disease ALS. The event will take place on July 10, 2021. You will leave from Ohio Stadium ride an out and back, Metric Century Plus 5.1 (67.2 miles). The ride will go out to London, OH where you will turn around and head back to Ohio Stadium for the Barbecue, Expo and Festival that will go from 12 PM - 4 PM NFL Legend, Barry Sanders, ex-teammate & friend of William White, will be the guest at the Expo presentiting Awards for top Fundraisers & Sponsors. This will take place from 2 PM- 4PM
Roll Bicycle Co. is our event partner. They will have a tent at Ohio Stadium to do a quick check of your bike, blow up tires and minor repairs. Roll will aslo have a support tent at the turn around point in London, OH. There will also be a couple of SUVs on the route along the way with stops every 10-15 miles for water and snacks.
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